We need help

Kleine Brutus Start Date: Mar 12, 2020 - End Date: Jul 11, 2020

My Travel Story

by: Kleine Brutus Start Date: Mar 12, 2020 - End Date: Jul 11, 2020
After going through life tired for far too long, I fell into bed one day. I was so tired that I could not get up anymore. I could no longer function. My memory has failed me. The joints and muscles constantly hurt. Although I have been at home for so long, I do not feel better. Refurbishing does not seem to be in there.


A life full of pain and a lot of stress. That is what a life with Fibromyalgia is. Planning is practically impossible. Every day I have to make choices in order to function a little.


Although my partner really does her best, understanding is sometimes not easy for her. This certainly influences our relationship as partners, as parents. But the worst thing of all is that Fibromyalgia influences my role as a mother in such a way that I feel I am not a good mother.

If I want to give my children all the attention and love, I can forget about the household tasks such as tidying up, cleaning and making food. It cannot be combined. I don't pull that. The will is there, but my body works against it. Much more often than I would like, I have to admire my children from the couch. There is nothing I would rather change than that.


My illness caused my 3 sons 10, 12 and 18 years to become independent faster. They often help


the household when I really can't. Unfortunately that is more often than I would like. Disappointed because Mommy is too sick to get out of bed again, smearing their butter mums for school said every morning. That is heartbreaking!

The examinations and diagnosis

Countless times I was told that I have to go to the psychiatrist. My blood values were good. There was nothing to see. The MRI showed that I have arthritis in my back and fingers. That made the pain in the aforementioned places explainable. But not the rest of the symptoms. And because no one could explain the constant muscle pain, I was told by the doctor that I have Fibromylagia. He was the only one who took my complaints seriously. The only one who made an effort to listen to me and find out where the complaints were coming from. The only one who understands that Fibromyalgia is not in your head.


People regularly draw the wrong conclusions. After all, they see very little about me. Being sick is annoying, but being invisibly sick is rotten. Very bad. That which one does not see does not seem to be understood. The doctors don't take you seriously, society doesn't want to take you seriously. I wish it would finally change, then a medicine could be sought, a solution. Fibromyalgia and everything you get for free I don't want my worst enemy.

Fortunately I have very nice people in my area. My father regularly takes the eldest on the road. He can be quite busy and then I can't handle him at all. Very annoying, for so many reasons but still I am happy that I am not alone.


It is that cannabis oil is illegal in Belgium and I do not want to take any risks for the sake of my family, but otherwise I would have tried. I am desperate for something, whatever, that actually helps with the complaint I have, if only for a moment.


on Fibromyalgia is learning how to handle pain without going crazy. Learn to enjoy the little things. It takes a lot of effort not to put up with it. In fact, you only have 2 choices, accept it and wait until everything is over (which in my opinion is not life) or put your shoulders under it and learn to enjoy the little things. I will not be stopped by this rotten disease. Being pregnant is hard, they say, but with Fibromyalgia everything is at least 50 times as heavy.


That was just my story.


Now that everything is going well, I would like to go on holiday with my family again, especially to thank the boys for having done so much for me, they go to school and when they come home they still do a lot in the household, which they actually do not but they say they do it with a lot of love and pleasure and understand my situation.


Financially it is not feasible to fulfill this wish, so I hope for enough donations to be able to go on holiday as a family and to thank them for what they have done and done for me.